Its been a while since I decided to start writing via this website. You know I have a job that I have a whole lot of time to think and I think about what I want to write each and everyday. The problem is I'm so damn tired when I get home from work that I just say "screw it" and not do this. Well I decided to write today because life doesn't get any shorter and I don't want to miss out on the ability God gave me.
I was diagnosed several months ago with lupus. My mind plays a lot of games when thinking about this disease and what it may do to me. Years ago people with lupus didn't have a good survival level, it's different now, survival is much better for us. The main problem with this disease is the constant fatigue and the constant pain that one is in 24/7. I guess that's the reason I don't get onto this blog when I get home from work, I'm just so frickin tired.
I really have no idea what it's like to not be in pain. Chronic pain is something I've lived with for as long as I can remember. I told someone the other day that the day I do wake up without pain I will be in heaven. That's kind of sad, but yet good. Right? Anyway, it sucks. Pain takes a persons energy away, thus the problem of fatigue. Kind of a catch 22 wouldn't ya say?
Well, if there is anyone out there living with chronic pain no matter what is causing it, please write me and let me know how you deal with it. I'd love to talk to others who may have such problems thus being a help to one another.
Saturday I'm going to a workshop on how to live with lupus. I told my one daughter maybe I'll meet another lonely sicky. I know that's not funny to some, but to those of us who are alone and sick, well a good laugh does help. Anyway, I'm looking forward to learning about what others are doing to help cope with their illness. Anything will help for sure.
I'll close for now. If anyone reads this, have a good day. Please feel free to leave any suggestions you might have on coping with pain, fatigue or the other problems that go along with it. God Bless and I'll be back soon.
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1 comment:
Glad you're writing mom ... I know you're helping someone, even if they never let you know it ... you're strong and you can do anything, and even though I might not show it, or say it enough, I'll always be there for you, despite my actions at time ... I guess I just hate watching you in pain all the time, and being sick all the time ... I wish that you COULD wake up one day with no pain ... I wish you didn't have to wait until Heaven for that ... anyway, I'm glad you're writing again ... I love you momma ... ~Em
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